Josh Provides hosts epilepsy support groups via Zoom on the first and third Tuesdays of the month at 6:30 p.m. One meeting each month is an “open discussion,” where members can share information and concerns, while the other meeting is an informational presentation about treatment options, medication, available devices and the importance of self-care.
Contact: JoshProvides by email at: info@joshprovides.org or call 800-706-2740.
Patient organizations aim to improve quality of life for individuals and their families who are affected by certain health conditions. Their objectives include raising public awareness of a disorder, dissemination of information about the disease and its treatment, and promotion of scientific research. Click on the links below to learn more about patient organizations across America who are involved in epilepsy research, treatment, and support.
The Antiepileptic Drug Pregnancy Registry
Caregiver Action Network
CDC – Epilepsy
Child Neurology Foundation
Citizens United for Research in Epilepsy (CURE)
Dravet Syndrome Foundation
Epilepsy Foundation
Family Caregiver Alliance/National Center on Caregiving
Hope for Hypothalamic Hamartomas (Hope for HH)
Lennox-Gastaut Foundation (LGS Foundation)
National Organization for Rare Disorders (NORD)
NIH – Epilepsy
Rasmussen’s Encephalitis Children’s Project, LLC (RE Children’s Project)
