RESOURCES

Epilepsy Websites
Epilepsy Support Groups and Epilepsy Resource Center
  • Josh Provides Epilepsy Support Group - Monthly meetings are held the first Tuesday of each month from 6:30 to 8:00pm at Perkins Restaurant located at Fruitville Road and Cattlemen in Sarasota. A different location is planned during the coming months. Contact: Sandi Chapnick, Event Coordinator, sandi@joshprovides.org or call 800-706-2740.
  • Southwest Florida Epilepsy Support Group (Naples) – Monthly Support Group every 2nd Wednesday of the month at 7PM in the Greater Naples YMCA, 5450 YMCA Road, #100, Naples, FL 34109 (Large Volpe Conference Room). For more information, contact Dan Rosenfeld 239-348-5155 or drosenfeld@efof.org
  • Epilepsy Resource Center - Located in the Greater Naples YMCA 5450 YMCA Road, Naples, FL34109

EpilepsyU.com - A website for epilepsy education, news, support

EpilepsyStore.com - An on-line store for epilepsy related jewelry, assistive products, etc

Epilepsy Center at Sarasota Memorial Hospital (Support Groups Currently Not Meeting)

Cutting Edge Epilepsy & Seizure Disorder Services

Sarasota Memorial offers one of Florida's leading centers for the evaluation and treatment of seizure disorders and epilepsy. The goal at the Epilepsy Center of Sarasota Memorial is complete control of seizures so that our patients may reach their full potential.

The Center's program encompasses:

  • In-patient and out-patient evaluation and treatment
  • Testing facilities
  • Inpatient epilepsy monitoring
  • Epilepsy surgery with brain mapping
  • Clinical research and trials to better delineate the optimal use of current treatment options and to test promising new treatments

Location: Sarasota Memorial Hospital, 1700 S. Tamiami Trail, Sarasota, Florida
Contact: (941) 906-7155

Currently, Sarasota Memorial Hospital does not offer Epilepsy Support Groups.

SUDEP Sudden Unexplained Death in Epilepsy Articles

1. Access World News
US Fed News (USA)...2017-06-11
WIPO PUBLISHES PATENT OF NEW YORK UNIVERSITY FOR "IDENTIFICATION OF EPILEPSY PATIENTS AT INCREASED RISK FROM SUDDEN UNEXPECTED DEATH IN EPILEPSY" (AMERICAN INVENTORS) 
... developing sudden unexpected death in epilepsy ( SUDEP ) comprising determining the presence or absence ...

WIPO Publishes Patent of New York University for "Identification of Epilepsy Patients at Increased Risk from Sudden Unexpected Death in Epilepsy" (American Inventors)

2. Sun, The (Lowell, MA)...2017-06-04
Harmful 'Fail first' health-care policies must end 
... in death. Sudden unexpected death in epilepsy ( SUDEP ) occurs each year in more than 1 in 1,000 ... patients with uncontrolled seizures, the risk of SUDEP increases to more than 1 out of 150. These facts ...

Epilepsy Articles
First Aid Procedures

Generalized Tonic-Clonic Seizure - (Grand Mal):

  • Speak calmly and reassuringly
  • Turn on side to keep airway clear
  • Do not restrain a person
  • Look for medical identification
  • Remove hazards such as furniture, glasses
  • Cushion person’s head
  • Loosen neckwear
  • Do not put anything in the person’s mouth
  • Do not give liquids
  • Time the seizure

Complex partial seizure – (Petit Mal):

  • Do not restrain
  • Speak calmly and reassuringly
  • Gently lead away from danger
  • Remain with person until completely aware of surroundings

When to Call EMS:

  • First time seizure
  • Person is diabetic or pregnant
  • Person is injured
  • Second seizure occurs shortly after initial seizure