Epilepsy Services of Southwest Florida
Wilson-Wood Foundation and Heron Creek Community Foundation
Award Grants to ESSWFL


Epilepsy Services of Southwest Florida has been awarded a $10,000 grant from the Sarasota based Wilson-Wood Foundation to help with costs associated with client case management.
"We are extremely grateful to the Wilson-Wood Foundation for its support of our program," said ESSWFL executive director Kevin Lindberg. "Support like this helps to assure that we can take on all eligible clients and avoid any delays in treatment."

Epilepsy Services of Southwest Florida also received a $1000 grant from the Heron Creek Community Foundation to assist with costs for medical services for clients residing in North Port.


Epilepsy Services of Southwest Florida
Presents Plaque to
Representative Matt Hudson


Epilepsy Services of Southwest Florida executive director, Kevin Lindberg, presents a plaque of appreciation from the Florida Epilepsy Alliance to District 80 State Representative Matt Hudson, R-Naples.

Representative Hudson serves as Florida’s chairman of the health care appropriations subcommittee which helps to determine Florida Department of Health funding levels.

This year’s healthy state budget meant an increase in funding for epilepsy programs throughout the state.

ESSWFL Presented a Program on Epilepsy Awareness and First Aid for Seizures for Manatee Sheriff's Department and North Port Police Department

Epilepsy Services of Southwest Florida worked with 997 Manatee Sheriff’s Department employees and 85 North Port Police Department personnel on epilepsy awareness, seizure recognition and first aid for seizures. Law enforcement personnel viewed the DVD “It Could Be Epilepsy - A Field Guide for Law Enforcement” and were presented with general information about epilepsy, different types of seizures and the how to help a person having a seizure. Manatee and North Port law enforcement personnel took a quiz after the presentation. All law enforcement employees completed the training successfully.

Cape Coral Girl Scouts
Give “Hope” and Kinship to a Three Year Old Girl with Epilepsy

Girl Scout Troops 102 and 463 are making a BIG impact because of a small girl named Greilyn. Greilyn has epilepsy and has endured over 300 seizures, her first seizure at only two weeks old rendering her legally blind. While Greilyn has a wonderful family and support system behind her, she never expected the sisterhood of girls to rally around her and her story.

Greilyn’s sister is a part of Cape Coral Girl Scout Troop 102. She shared with the girls about her sister and the troop decided to learn about epilepsy. They had a nurse come in to speak about what happens to the brain with a seizure. A volunteer of the troop also suffers from epilepsy and gave girls an emotional look at what it feels like to live with the disease. A service dog trainer came in and spoke to the girls about the process of training and how a service dog helps people with epilepsy.

They also bonded with Greilyn and were moved by her story. The girls felt a special kinship with her. They loved to see her smile and make her giggle. The girls of Troop 102 got an idea that would change Greilyn’s life… they wanted to use some money from the cookie sale to help get Greilyn a service dog, something that will immensely improve the quality of life. And the cookie campaign, “Hope for Greilyn” (Hope is the dog’s name) came to life. Troop 463 also jumped onto the campaign. They made t-shirts in purple (Greilyn’s favorite color and the color that represents Epilepsy Awareness), the cookie booths were made in purple with signs of support, pictures, and their goal to bring “Hope” to her. In the end, the girls succeeded. Troop 102 sold a whopping 17,000 boxes of cookies and were able to donate $1,000 for Hope to Greilyn. Troop 463 donated $670 of their cookie money. They had a special check presentation party to celebrate this.

Cape Coral Girl Scouts of Troops 102 and 463, and now other Girl Scouts have learned to love and appreciate those who struggle. They have learned that through their hard work, they have the ability to be a part of something that can change someone’s life to forever. This experience is certainly something they will carry with them through life.

About Girl Scouts of Gulfcoast Florida, Inc.: Girl Scouting builds girls of Courage, Confidence and Character who make the world a better place. Girl Scouts of Gulfcoast Florida, Inc. is chartered by Girl Scouts of the USA and serves over 7,500 girls in ten counties including: Manatee, Hardee, Highlands, Sarasota, DeSoto, Charlotte, Glades, Lee, Hendry, and Collier. For more information about the Girl Scouts of Gulfcoast Florida visit www.gsgcf.org.


Epilepsy Services of SW Florida
is most grateful for a $5000 grant from the
Arthur T. Esslinger Memorial Fund of the Community Foundation of Sarasota County.
The funds will help us cover client direct medical costs.

We are also grateful for a recent grant of $2000 from the
Plantation Community Foundation
and $1000 from the
Manatee Community Foundation.
Both of those grants will also help to cover client medical expenses.



Thank you to these organizations for their support.

Dawn Langelle has a new lease on life and she wants everyone to know about it. (see poem below)

After two devastating head injuries in 2009, one caused simply by being distracted while on a walk, the other by a fall off of her bike, Dawn began suffering seizures and related symptoms that changed her life.“There was a significant period of time where all I could do was lie in the dark with earplugs and a pillow over my eyes.”

She had seen numerous practitioners, she explains, some even questioning the validity of her story, others diagnosing her as mentally ill. Her search for help was costly. Her seizures led to losing her job. She had no health insurance. Her mother was able to help her pay mounting medical expenses. “She went into the funds she had saved for when she aged to help me,” Dawn explains. ;“I had been planning to be the one who helped her,” she says, well aware of the irony of the role reversal."

A self- described fitness nut and a computer whiz who had made a good living with her technology skills, she found herself in a desperate situation, barely able to function, let alone think about finding employment. Herplight had lasted more than four years and her health was deteriorating. A case manager with a brain injury support organization suggested she contact Epilepsy Services of Southwest Florida.

Dawn participated in the intake process and learned she was eligible for a neurological consult with Dr. Ronald Aung-Din, one of the Epilepsy Services physicians. This was followed up by another appointment with the doctor during a monthly clinic. A new diagnosis and a new medication regimen was working. The fog was beginning to lift and she gained strength and improved clarity of thought. She was on her way back to a new level of self-management. “I told my mother that we would be able to have some fun again,” she said proudly.

She still has a way to go with her recovery but she is grateful to be where she’s at now. She will continue to participate in the program at no cost. She encourages others to hang in. “These people can give you hope and help you live your life optimally.”

This website is sponsored by
The Plantation Community Foundation of Venice Florida.
Lee, Hendry & Glades Counties United Way of Manatee County, Inc. United Way of South Sarasota County

Introducing My Epilepsy Diary
HOW YOU CAN HELP!

Donate in the Memory of
Gregg Gamso

Dec. 18, 1947 – April 2, 2015

Gregg T. Gamso died Thursday, April 2, 2015 at age 67 at Tidewell Hospice House in Sarasota. Gregg was born in Lafayette, Indiana and moved to Sarasota in 1958. Predeceased by his parents, Harriet and Jack Gamso he is survived by two sisters, Janice Anderson (John), Lori Kauffman (Bob) and brother, Joel Gamso (Tammy), three nieces and four nephews. He also is survived by dear friends, Pat Kolodgy and Cindy and Ben Langford.
A Celebration of Life ceremony will be held at a later date for family and friends.

____________________________


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Southwest Florida Epilepsy Awareness Walk

5K (3.1 Miles)

Saturday
May 16, 2015
Lakes Regional Park
Fort Myers

SPONSORS

Florida Neurology Group

Kelly L. Fayer, P.A. Attorney

Supernus Pharmaceuticals

The News-Press Fort Myers

VNS Therapy by Cyberonics

UCB

United Way

Register for the Walk

Let’s walk together at Lakes Regional Park in Fort Myers to support epilepsy awareness and the programs and services provided by Epilepsy Services of Southwest Florida.

(Parking at Lakes Regional Park is included with event registration.)

Join us on Saturday, May 16th at the Southwest Florida Epilepsy Awareness Walk.

  • Start a team!
  • Get people to sponsor you!
  • Be a Corporate Sponsor!
  • Be an In-Kind Sponsor!
  • Participate!
  • Volunteer!
You can help to make a difference in the life of someone with epilepsy!

Epilepsy Services of Southwest Florida
1900 Main Street, Suite 212
Sarasota, FL 34236

Office (941) 953-5988



JOIN OUR CAMPAIGN FOR SUPPORT

Please don’t forget to make your tax-deductible gift to Epilepsy Services of Southwest Florida.
Your generous support will touch lives and provide greater hope through the programs and services offered.

Donate now by sending a check to:


Epilepsy Services of SW Florida 1900 Main St., Suite 212 Sarasota, FL 34236

You can also designate your United Way contribution or Combined Federal Campaign contribution to ESSWF. Our CFC # is 21109.


Thank you for your kindness and generosity.

A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE

TOLL-FREE NUMBER: 1-800-435-7352 OR VISIT: www.800helpfla.com



Beneva Florist will make
a 5% donation to ESSWFL
when you make an order.
Just click on Helping Hands
at the very bottom of the
Beneva Flowers home page
and click on Epilepsy Services.



We are most grateful for Bowes Imaging Centers who provide MRI services pro bono for our clients in Sarasota and Manatee counties.
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