Epilepsy Services of Southwest Florida

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Wilson-Wood Foundation Awards $10k Grant
to Epilepsy Services of Southwest Florida

Epilepsy Services of Southwest Florida has been awarded a $10,000 grant from the Sarasota based Wilson-Wood Foundation to help with costs associated with client case management.

"We are extremely grateful to the Wilson-Wood Foundation for its support of our program," said ESSWFL executive director Kevin Lindberg. "Support like this helps to assure that we can take on all eligible clients and avoid any delays in treatment."

Matt Sandburg Named President of
Epilepsy Services Board of Directors

Matt Sandburg was elected President of the Board of Directors for Epilepsy Services of Southwest Florida. Matt, is a Criminal Defense attorney in Sarasota.

Art Jackman, the President of the Board from 2012 until 2017 was presented with a plaque for his many years of service to Epilepsy Services.

Epilepsy Services of Southwest Florida is a non-profit charitable organization that provides critical medical attention to uninsured individuals over the age of 18 who have been diagnosed with epilepsy. Additionally, they provide prevention and education programs to the community at large.

Epilepsy Services Campaign For Support

When you support Epilepsy Services of Southwest Florida, you help nearly 600 local patients who have no place else to go. Epilepsy is a disorder of the central nervous system and the brain's electrical system. It is characterized by unpredictable seizures that vary in cause and severity. It can mean challenges in school and on the job, uncertainties in social situations, limitations on driving and difficulties with independent living. For many of our clients outcomes also include a reduction in seizures and fewer visits to the emergency room.

Your tax deductible gift to Epilepsy Services will help to assure that all of those who can benefit from our services will have access to the program. Adequate funding assures that nobody who qualifies for the program is turned away or put on a waiting list.

Will you please consider helping us by making a financial gift to Epilepsy Services of Southwest Florida today? Click to DONATE to make a gift or you can make a credit card donation by phone by calling (941) 953-5988 x303.

Bernard and Mildred Doyle Charitable Trust Award Grant to Epilepsy Services

The Bernard and Mildred Doyle Charitable Trust Selection Committee awarded Epilepsy Services a grant for $4000 to help cover costs associated with providing critical medical and case management services for the underserved population diagnosed with epilepsy. The grant will provide assistance for empowering patients toward self-management in order for them to lead as close to normal a life as possible.

Coming Soon.....

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The Selby Foundation recently awarded a $10,000 grant to Epilepsy Services of Southwest Florida to assist with the cost of new office furniture. The majority of the funding will be used to upgrade the agency's reception and waiting areas.

Epilepsy Services recently moved into 1000 square feet in the Glasser Schoenbaum Human Services Center. "This gift helps us in our efforts to create the most efficient and professional office environment that we can," explained executive director Kevin Lindberg. "We are very grateful for the support of Selby."

Dr. Andrew Keegan

Dr. Andrew P. Keegan, M.D. a Board Certified Neurologist, joined Epilepsy Services of Southwest Florida in February as a staff neurologist in 2016.

Dr. Keegan is currently the Associate Director of the Roskamp Institute Clinic in Sarasota where he is the principal investigator of multiple clinical trials. The Mission of The Roskamp Institute is to conduct scientific research to discover safe and effective new drug therapies to successfully treat diseases of the mind and to promote healthy aging.

Dr. Keegan began his training at Rensselaer Polytechnic Institute in Troy, NY where he completed his B.S. in Biomedical Engineering. After receiving his B.S., he pursued research in the neurosciences while obtaining a Master’s degree in Bioengineering at the University of Illinois in Chicago. Dr. Keegan completed medical school at Tulane University in New Orleans. He completed his internship and Neurology residency at Washington University in St. Louis.

Dr. Van Passel Honored for Years of Service

Dr. Leonie Van Passel was recently honored for serving as a staff neurologist for Epilepsy Services of Southwest Florida from 2007 until 2015. Kevin Lindberg, Executive Director presented her with a plaque.



Epilepsy Services of Southwest Florida
Presents Plaque to
Representative Matt Hudson


Epilepsy Services of Southwest Florida executive director, Kevin Lindberg, presents a plaque of appreciation from the Florida Epilepsy Alliance to District 80 State Representative Matt Hudson, R-Naples.

Representative Hudson serves as Florida’s chairman of the health care appropriations subcommittee which helps to determine Florida Department of Health funding levels.

This year’s healthy state budget meant an increase in funding for epilepsy programs throughout the state.

ESSWFL Presented a Program on Epilepsy Awareness and First Aid for Seizures for Manatee Sheriff's Department and North Port Police Department

Epilepsy Services of Southwest Florida worked with 997 Manatee Sheriff’s Department employees and 85 North Port Police Department personnel on epilepsy awareness, seizure recognition and first aid for seizures. Law enforcement personnel viewed the DVD “It Could Be Epilepsy - A Field Guide for Law Enforcement” and were presented with general information about epilepsy, different types of seizures and the how to help a person having a seizure. Manatee and North Port law enforcement personnel took a quiz after the presentation. All law enforcement employees completed the training successfully.

Cape Coral Girl Scouts
Give “Hope” and Kinship to a Three Year Old Girl with Epilepsy

Girl Scout Troops 102 and 463 are making a BIG impact because of a small girl named Greilyn. Greilyn has epilepsy and has endured over 300 seizures, her first seizure at only two weeks old rendering her legally blind. While Greilyn has a wonderful family and support system behind her, she never expected the sisterhood of girls to rally around her and her story.

Greilyn’s sister is a part of Cape Coral Girl Scout Troop 102. She shared with the girls about her sister and the troop decided to learn about epilepsy. They had a nurse come in to speak about what happens to the brain with a seizure. A volunteer of the troop also suffers from epilepsy and gave girls an emotional look at what it feels like to live with the disease. A service dog trainer came in and spoke to the girls about the process of training and how a service dog helps people with epilepsy.

They also bonded with Greilyn and were moved by her story. The girls felt a special kinship with her. They loved to see her smile and make her giggle. The girls of Troop 102 got an idea that would change Greilyn’s life… they wanted to use some money from the cookie sale to help get Greilyn a service dog, something that will immensely improve the quality of life. And the cookie campaign, “Hope for Greilyn” (Hope is the dog’s name) came to life. Troop 463 also jumped onto the campaign. They made t-shirts in purple (Greilyn’s favorite color and the color that represents Epilepsy Awareness), the cookie booths were made in purple with signs of support, pictures, and their goal to bring “Hope” to her. In the end, the girls succeeded. Troop 102 sold a whopping 17,000 boxes of cookies and were able to donate $1,000 for Hope to Greilyn. Troop 463 donated $670 of their cookie money. They had a special check presentation party to celebrate this.

Cape Coral Girl Scouts of Troops 102 and 463, and now other Girl Scouts have learned to love and appreciate those who struggle. They have learned that through their hard work, they have the ability to be a part of something that can change someone’s life to forever. This experience is certainly something they will carry with them through life.

About Girl Scouts of Gulfcoast Florida, Inc.: Girl Scouting builds girls of Courage, Confidence and Character who make the world a better place. Girl Scouts of Gulfcoast Florida, Inc. is chartered by Girl Scouts of the USA and serves over 7,500 girls in ten counties including: Manatee, Hardee, Highlands, Sarasota, DeSoto, Charlotte, Glades, Lee, Hendry, and Collier. For more information about the Girl Scouts of Gulfcoast Florida visit www.gsgcf.org.



Dawn Langelle has a new lease on life and she wants everyone to know about it. (see poem below)

After two devastating head injuries in 2009, one caused simply by being distracted while on a walk, the other by a fall off of her bike, Dawn began suffering seizures and related symptoms that changed her life.“There was a significant period of time where all I could do was lie in the dark with earplugs and a pillow over my eyes.”

She had seen numerous practitioners, she explains, some even questioning the validity of her story, others diagnosing her as mentally ill. Her search for help was costly. Her seizures led to losing her job. She had no health insurance. Her mother was able to help her pay mounting medical expenses. “She went into the funds she had saved for when she aged to help me,” Dawn explains. ;“I had been planning to be the one who helped her,” she says, well aware of the irony of the role reversal."

A self- described fitness nut and a computer whiz who had made a good living with her technology skills, she found herself in a desperate situation, barely able to function, let alone think about finding employment. Herplight had lasted more than four years and her health was deteriorating. A case manager with a brain injury support organization suggested she contact Epilepsy Services of Southwest Florida.

Dawn participated in the intake process and learned she was eligible for a neurological consult with Dr. Ronald Aung-Din, one of the Epilepsy Services physicians. This was followed up by another appointment with the doctor during a monthly clinic. A new diagnosis and a new medication regimen was working. The fog was beginning to lift and she gained strength and improved clarity of thought. She was on her way back to a new level of self-management. “I told my mother that we would be able to have some fun again,” she said proudly.

She still has a way to go with her recovery but she is grateful to be where she’s at now. She will continue to participate in the program at no cost. She encourages others to hang in. “These people can give you hope and help you live your life optimally.”

Disclosure Requirements

FLORIDA DEPARTMENT OF AGRICULTURE AND CONSUMER SERVICES
has designated
EPILEPSY SERVICES OF SOUTHWEST FLORIDA, A NON-PROFIT CHARITY, 5013 ORGANIZATION.

A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.

1-800-HELP-FLA (1-800-435-7352), www.FloridaConsumerHelp.com

Funded by United Way of Lee, Hendry & Glades Counties Funded by United Way of South Sarasota County

Introducing My Epilepsy Diary

Funded by the Florida

Department of Health

Support Epilepsy Services
of Southwest Florida


Please don’t forget to make
your tax-deductible gift


Your generous support will touch lives and provide greater hope through the programs and services offered.

Donate now by clicking on the DONATE button above or by sending a check to:

Epilepsy Services of SW Florida, 1750 17th Street, Building I-2, Sarasota, FL 34234

You can also designate your United Way contribution or Combined Federal Campaign contribution to ESSWF. Our CFC # is 21109.

Thank you for your kindness and generosity.

Tour for Epilepsy

November 12, 2017

Photos from 2017: Click Here

Coastline Cyclery

10676 Colonial Blvd. - Unit 50
Fort Myers, FL 33913
(239) 288-4819

2018 Southwest Florida Epilepsy Awareness Walk

April 21, 2018

Photos from April 22, 2017


Epilepsy Services of SW Florida

Glasser Schoenbaum Human Services Center

1750 17th Street Building I - 2
Sarasota, Florida 34234
- Map
Office (941) 953-5988



DONATE
Support Epilepsy Services

Please don’t forget to make your tax-deductible gift to
Epilepsy Services of Southwest Florida.
Your generous support will touch lives and provide greater hope through the programs and services offered.

Donate now by sending a check to:

Epilepsy Services of SW Florida, 1750 17th Street, Building I-2, Sarasota, FL 34234

You can also designate your United Way contribution or Combined Federal Campaign contribution to ESSWF. Our CFC # is 21109.

Thank you for your kindness and generosity.

A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE

TOLL-FREE NUMBER: 1-800-435-7352 OR VISIT: www.800helpfla.com

_____________________________

We are most grateful for Bowes Imaging Centers who provide MRI services pro bono for our clients in Sarasota and Manatee counties.

Thank You!

_________________________________


Beneva Florist will make
a 5% donation to ESSWFL
when you make an order.
Just click on Helping Hands
at the very bottom of the
Beneva Flowers home page
and click on Epilepsy Services.


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