Epilepsy Services of Southwest Florida

Wilson-Wood Foundation
Awards $10k Grant to Epilepsy Services of Southwest Florida

Epilepsy Services of Southwest Florida has been awarded a $10,000 grant from the Sarasota based Wilson-Wood Foundation to help with costs associated with client case management.

"We are extremely grateful to the Wilson-Wood Foundation for its support of our program," said ESSWFL executive director Kevin Lindberg. "Support like this helps to assure that we can take on all eligible clients and avoid any delays in treatment."


Thank You for Supporting Epilepsy Services During the 2015 Giving Challenge

The program at Epilepsy Services helps improve the lives of over 600 clients a year who have been diagnosed with epilepsy. Our clients receive, at little or no cost, case management services, consultations with neurologists, prescription medication and diagnostic testing such as MRIs, CAT scans, EEGs and lab work.

Your donations help us provide services to our current clients and ensure that we have the opportunity to offer services to future clients.

The 2015 Giving Challenge was made possible by the Community Foundation of Sarasota County and The Patterson Foundation with support from the William G. and Marie Selby Foundation, John S. and James L. Knight Foundation, Manatee Community Foundation, and the Herald-Tribune Media Group.


More than 175 people turned out for the first ever Southwest Florida Epilepsy Awareness Walk on May 16 at Lakes Regional Park in Fort Myers. The event was in support of Epilepsy Services of Southwest Florida (ESSWF) offices in Naples and Fort Myers.

Twenty sponsors and in-kind donors contributed to increasing the awareness level of the agency's programs and services. The event raised $7500 for ESSWF. Speakers during the opening ceremony included executive director Kevin Lindberg, Epilepsy Services client Wanda Ferguson and community advocate and volunteer Jane Kelly. Jane has suffered seizures as a result of a brain tumor and spoke about the importance of programs like ESSWF. She has been seizure free for a year and a half. Fort Myers neurologist Dr. Lane Carlin also addressed the participants before the two mile walk and reminded the crowd how the program fulfills a very important need for patients who have very few or no other health care options.

"We really weren't sure what to expect in terms of numbers but when the event was conceived we certainly didn’t envision this large of a turnout," said executive director Kevin Lindberg. "It was very gratifying to see the epilepsy community come together like this and we look forward to the future expansion of this event," he added.

Participants enjoyed the services of a DJ from Midnight Sun Entertainment, a Zumba warm-up, face painting by Crystal Racicot, a stunning version of God Bless America from Monicke Bell and a variety of refreshments. More than 50 Girl Scouts also participated in the festivities.

The event was the brainchild of Fort Myers resident and event chair Iris Robles, a young mother with the challenges of caring for a child with epilepsy. "It is so important that more people become aware of the scope of epilepsy in our community and the assistance that is available at Epilepsy Services," she said.

** Click here to see photos **

Epilepsy Services of Southwest Florida
Presents Plaque to
Representative Matt Hudson

Epilepsy Services of Southwest Florida executive director, Kevin Lindberg, presents a plaque of appreciation from the Florida Epilepsy Alliance to District 80 State Representative Matt Hudson, R-Naples.

Representative Hudson serves as Florida’s chairman of the health care appropriations subcommittee which helps to determine Florida Department of Health funding levels.

This year’s healthy state budget meant an increase in funding for epilepsy programs throughout the state.

ESSWFL Presented a Program on Epilepsy Awareness and First Aid for Seizures for Manatee Sheriff's Department and North Port Police Department

Epilepsy Services of Southwest Florida worked with 997 Manatee Sheriff’s Department employees and 85 North Port Police Department personnel on epilepsy awareness, seizure recognition and first aid for seizures. Law enforcement personnel viewed the DVD “It Could Be Epilepsy - A Field Guide for Law Enforcement” and were presented with general information about epilepsy, different types of seizures and the how to help a person having a seizure. Manatee and North Port law enforcement personnel took a quiz after the presentation. All law enforcement employees completed the training successfully.

Cape Coral Girl Scouts
Give “Hope” and Kinship to a Three Year Old Girl with Epilepsy

Girl Scout Troops 102 and 463 are making a BIG impact because of a small girl named Greilyn. Greilyn has epilepsy and has endured over 300 seizures, her first seizure at only two weeks old rendering her legally blind. While Greilyn has a wonderful family and support system behind her, she never expected the sisterhood of girls to rally around her and her story.

Greilyn’s sister is a part of Cape Coral Girl Scout Troop 102. She shared with the girls about her sister and the troop decided to learn about epilepsy. They had a nurse come in to speak about what happens to the brain with a seizure. A volunteer of the troop also suffers from epilepsy and gave girls an emotional look at what it feels like to live with the disease. A service dog trainer came in and spoke to the girls about the process of training and how a service dog helps people with epilepsy.

They also bonded with Greilyn and were moved by her story. The girls felt a special kinship with her. They loved to see her smile and make her giggle. The girls of Troop 102 got an idea that would change Greilyn’s life… they wanted to use some money from the cookie sale to help get Greilyn a service dog, something that will immensely improve the quality of life. And the cookie campaign, “Hope for Greilyn” (Hope is the dog’s name) came to life. Troop 463 also jumped onto the campaign. They made t-shirts in purple (Greilyn’s favorite color and the color that represents Epilepsy Awareness), the cookie booths were made in purple with signs of support, pictures, and their goal to bring “Hope” to her. In the end, the girls succeeded. Troop 102 sold a whopping 17,000 boxes of cookies and were able to donate $1,000 for Hope to Greilyn. Troop 463 donated $670 of their cookie money. They had a special check presentation party to celebrate this.

Cape Coral Girl Scouts of Troops 102 and 463, and now other Girl Scouts have learned to love and appreciate those who struggle. They have learned that through their hard work, they have the ability to be a part of something that can change someone’s life to forever. This experience is certainly something they will carry with them through life.

About Girl Scouts of Gulfcoast Florida, Inc.: Girl Scouting builds girls of Courage, Confidence and Character who make the world a better place. Girl Scouts of Gulfcoast Florida, Inc. is chartered by Girl Scouts of the USA and serves over 7,500 girls in ten counties including: Manatee, Hardee, Highlands, Sarasota, DeSoto, Charlotte, Glades, Lee, Hendry, and Collier. For more information about the Girl Scouts of Gulfcoast Florida visit www.gsgcf.org.

Dawn Langelle has a new lease on life and she wants everyone to know about it. (see poem below)

After two devastating head injuries in 2009, one caused simply by being distracted while on a walk, the other by a fall off of her bike, Dawn began suffering seizures and related symptoms that changed her life.“There was a significant period of time where all I could do was lie in the dark with earplugs and a pillow over my eyes.”

She had seen numerous practitioners, she explains, some even questioning the validity of her story, others diagnosing her as mentally ill. Her search for help was costly. Her seizures led to losing her job. She had no health insurance. Her mother was able to help her pay mounting medical expenses. “She went into the funds she had saved for when she aged to help me,” Dawn explains. ;“I had been planning to be the one who helped her,” she says, well aware of the irony of the role reversal."

A self- described fitness nut and a computer whiz who had made a good living with her technology skills, she found herself in a desperate situation, barely able to function, let alone think about finding employment. Herplight had lasted more than four years and her health was deteriorating. A case manager with a brain injury support organization suggested she contact Epilepsy Services of Southwest Florida.

Dawn participated in the intake process and learned she was eligible for a neurological consult with Dr. Ronald Aung-Din, one of the Epilepsy Services physicians. This was followed up by another appointment with the doctor during a monthly clinic. A new diagnosis and a new medication regimen was working. The fog was beginning to lift and she gained strength and improved clarity of thought. She was on her way back to a new level of self-management. “I told my mother that we would be able to have some fun again,” she said proudly.

She still has a way to go with her recovery but she is grateful to be where she’s at now. She will continue to participate in the program at no cost. She encourages others to hang in. “These people can give you hope and help you live your life optimally.”

This website is sponsored by
The Plantation Community Foundation of Venice Florida.
Lee, Hendry & Glades Counties United Way of Manatee County, Inc. United Way of South Sarasota County

Introducing My Epilepsy Diary


April 23, 2016

2nd Annual

Southwest Florida

Epilepsy Awareness Walk

Lakes Regional Park

Fort Myers

Epilepsy Services of Southwest Florida
1900 Main Street, Suite 212
Sarasota, FL 34236

Office (941) 953-5988


Please don’t forget to make your tax-deductible gift to Epilepsy Services of Southwest Florida.
Your generous support will touch lives and provide greater hope through the programs and services offered.

Donate now by sending a check to:

Epilepsy Services of SW Florida 1900 Main St., Suite 212 Sarasota, FL 34236

You can also designate your United Way contribution or Combined Federal Campaign contribution to ESSWF. Our CFC # is 21109.

Thank you for your kindness and generosity.


TOLL-FREE NUMBER: 1-800-435-7352 OR VISIT: www.800helpfla.com

Beneva Florist will make
a 5% donation to ESSWFL
when you make an order.
Just click on Helping Hands
at the very bottom of the
Beneva Flowers home page
and click on Epilepsy Services.

We are most grateful for Bowes Imaging Centers who provide MRI services pro bono for our clients in Sarasota and Manatee counties.

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